临床护理路径对SLE病人健康相关生活质量的影响(1)
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[摘要] 目的 探讨临床护理路径对系统性红斑狼疮患者健康相关生活质量的影响。方法106例系统性红斑狼疮患者随机分为2组,对照组接受传统的健康教育方法,实验组制定健康教育路径,按护理路径对家属及患者同时进行健康教育,1年后比较实施前和实施后两组患者健康相关生活质量评分,并随访中断服药及复发情况。结果 实验组患者的健康相关生活质量明显高于对照组(P<0.05),中断服药及复发例数明显低于对照组(P<0.01,P<0.05)。结论 按临床护理路径实施健康教育可提高SLE病人健康教育效果,中断服药及复发的情况明显改善,健康相关生活质量明显提高。
[关键词] 临床护理路径;生活质量;系统性红斑狼疮
[中图分类号] R473.75[文献标识码]A[文章编号]
Impact ofClinical Nursing Pathways on Health-related Quality of life in patients with Systemic Lupus Erythematosus
XIE Xiu-hua*
(Department of nursing,Shandong Medical College, Linyi 276002,China)
[Abstract]Objective To explore the effect of Clinical Nursing Pathways on the health-related quality of life of patients with Systemic Lupus Erythematosus(SLE). Methods 106 patients with SLE were randomly divided into two groups. Patients in the control group only received the routine nursing care,and patients in the experiment group received Clinical nursing pathways intervention.The Medical Outcomes Study Short Form-36(SF-36) was applied in the 106 SLE patients, the scores of health-related quality of life were compared after one year.In the meantime,the patients who stop taking the medication and relapsed received follow-up. Results The health-related quality of life in the experiment group significantly increases compared with the control group(P<0.05).the patients who stop taking the medication and relapsed in the experiment group were obviously lower than that in the control group(P<0.01,P<0.05).Conclusions Adopting health education based on Clinical nursing pathways could effectively enhance the effect of health education and improve the health-related quality of life of patients with SLE.
[Key words]Clinical nursing pathways;Quality of life ; Systemic lupus erythematosus
系统性红斑狼疮(systemic lupus erythematosus,SLE)是一种临床表现有多系统损害症状的慢性系统性自身免疫病,其血清中具有以抗核抗体为主的大量不同的自身抗体、病程以病情缓解和急性发作交替为特点,目前尚不能根治。但近年来由于对SLE诊断水平的提高,早期发现轻型病例以及对其应用激素和细胞毒性药物合理治疗,SLE的预后明显改善,许多报道其5年生存率在85%以上,10年生存率超过60%[1]。随着生存率的升高,关注SLE病人健康相关生活质量(health-related quality of life,HRQoL)越来越多的引起重视[2]。对SLE病人HRQoL的评估已经成为判断预后及治疗效果的重要手段[3]。本研究旨在了解SLE患者生活质量及临床护理路径对HRQoL的影响,现将结果报道如下:
1 资料与方法
1.1 一般资料106例SLE病人为2007年6月—2009年6月在我校附属医院肾脏风湿科住院及门诊就诊的病人。纳入标准:符合美国风湿病学会(ACR)1982年修订的SLE诊断标准,有阅读理解填表能力,排除标准:合并严重心衰、狼疮脑病、肾功能异常(CKD-3期及以上)及合并其他慢性病患者。
本研究经本院道德伦理委员会批准。所有受检对象均知情同意。
1.2研究方法
将106例患者随机分为实验组(56例)、对照组(50例),分别接受SF—36量表的基础评估。SF—36评价健康相关生活质量包括以下9个方面:生理功能(PF)、健康职能(PR)、身体疼痛(BP)、总体健康(GH)、活力(VT)、社会功能(SF)、情感职能(RE)、精神健康(MH)和健康变化(HT) ......
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